lateral sclerosis (ALS), also known as Lou Gehrig's disease and
motor neurone disease (MND), is characterised by a progressive
degeneration of the motor cells in the brain and spinal cord.
The following sites offer useful information about ALS.
- The ALS Association
- The website
of this nonprofit organization provides information about ALS,
news, resources, services, and research information. Most of
the association's publications are not online, but may be ordered
at no charge by persons with ALS.
- ALS (Lou Gehrig's Disease)
Information & Resources
- This section
of the "Doctor's Guide" provides links to medical news
and alerts, drug information, discussion groups and newsgroups,
- ALS Survival Guide
- The Survival
Guide is a very extensive personal website by an individual with
ALS. The site is well designed and packed with information and
links. Topics include ALS news, causes of ALS, statistics, treatments,
adaptive equipment, legal/financial, advocacy, ALS Digest, support
group, research abstracts, resources, and much more. As always,
we recommend viewing medical and legal information on personal
websites with caution.
Lateral Sclerosis Fact Sheet
- This publication
from the National Institute of Neurological Disorders and Stroke
(NINDS) provides an overview of ALS, including its symptoms,
diagnosis, causes, treatment, research, and resources.
- The International Alliance
of ALS/MND Associations
- The Alliance
is a consortium of over 50 national patient support and advocacy
groups from more than 40 countries. Its website includes general
information about ALS and ALS news as well as information about
the organization. The membership directory is especially useful
for people seeking ALS resources in other countries.
Dystrophy Association (MDA) - A Guide to Materials about ALS
on this Web Site
- The MDA
website has a wide variety of publications and resources about
MLS, including an online fact sheet, caregivers' guide, newsletter,
and service programs. This page is a handy starting point.
- My Experience
- Noted scientist
Stephen Hawkins writes about his experiences.
- At first
glance, this looks like a just-for-fund-raising site, so be sure
to scroll down for a excellent collection of current (and archived)
news articles about ALS, as well as articles about people with
ALS, links, and readings.
- World Federation of Neurology -
Amyotrophic Lateral Sclerosis
- Geared primarily
to researchers and clinicians, this extensive web site offers
information about research and treatment, news, clinical trials,
conferences, and research centers. Patient resources and links
are also included.
- Neuromuscular Disorders
- Resources in your state
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