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[The DRM Guide to Disability Resources on the Internet]

  The DRM WebWatcher

Brain Tumors

 Updated 9/2005

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According to the Brain Tumor Society, over 100,000 people in the U.S. will be diagnosed with a primary or metastatic brain tumor within the next 12 months. These web sites provide a wealth of information and resources for people with brain tumors, their families, and health care providers.
 
[bullet] Acoustic Neuroma Association
This association provides information and support to people with an acoustic neuroma, a benign tumor affecting the eighth cranial nerve. Its web site provides an overview of the disorder and its diagnosis and treatment, along with information about the association's support groups and e-mail list.
 
[bullet] American Brain Tumor Association (ABTA)
ABTA offers a wealth of information for people with brain tumors and their families, including an extensive Primer of Brain Tumors. Supprt resources include inspirational personal narratives, online and external resources. Professionals will find a wide variety of helpful tools, including a collection of journal sites, meeting notices, clinical trial resources, and grant information.
 
[bullet] Brain Cancer
Part of OncoLink, this web site pulls together a wealth of information for health care professionals, patients, families, and others. Broad topics include general information about brain cancer, symptom management, and psychosocial support/personal experiences. There is a separate section on pediatric brain tumors.
 
[bullet] Brain Tumor Society
The Society's web site is filled with information for people with brain tumors and their families, including fact sheets, frequently asked questions, and resources. Health care providers will find an extensive guide for primary care physicians, grant information, events and conferences, and more.
 
[bullet] Central Brain Tumor Registry of the United States (CBTRUS)
CBTRUS is a not-for-profit corporation "committed to providing a resource for gathering and disseminating current epidemiologic data on all primary brain tumors, benign and malignant...." Its website contains statistical summaries from its annual reports, and related information.
 
[bullet] Children's Brain Tumor Foundation
Geared for parents, this nicely designed and well-written web site includes sections on medical information, hospital stays, going home, school issues, and getting help.
 
[bullet] National Brain Tumor Foundation
The patient information section of this attractive and easy-to-use web site includes a wealth of information about surviving a brain tumor, "Connecting and Coping," "Ask the Health Professional," publications and newsletters, a link library, and information about the organization and its grant programs.
 
[bullet] Pediatric Brain Tumor Foundation of the United States
This web site describes the key projects of the foundation, which include the Ride for Kids fundraiser, research grants, the National Brain Tumor Database, and family support programs.
 
[bullet] Related Subjects
[bullet] Cancer
[bullet] Hydrocephalus
[bullet] Neurofibromatosis
[bullet] Neurological Disorders
[bullet] Specific Disorders
[bullet] Resources in your state
 
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