fatigue and immune dysfunction syndrome - also known as CFIDS,
chronic fatigue syndrome (CFS), myalgic encephalomyelitis (ME),
and other names - is a debilitating and complex disorder characterized
by profound fatigue that is not improved by bed rest.
fatigue syndrome and fibromyalgia share a number of symptoms,
and the names are often used interchangeably in the medical literature;
for a discussion of the differences and similarities, see this
article from the Arthritis Foundation.
of this nonprofit organization provides a wealth of information
for and about people with CFIDS. Included are resources for patients,
family and friends, youth, medical professionals, media, support
groups, legal issues, and a reading list, as well as an extensive
separate section on advocacy resources. Archived issues of The
CFIDS Chronicle and The CFS Research Review are also
by the National Center for Infectious Diseases, this authoritative,
consumer-oriented website provides information about what CFS
is and how it is treated. There is an extensive guide to support
groups, as well as some more technical reports and research.
site by David A. Hall, M.D., a (former) physician who has CFIDS.
While Dr. Hall's website does not present the objectivity or
professionalism of a government agency or legitimate nonprofit
organization, it does provide a readable, personal, professional,
and alternative perspective on this little-know disease. His
discussion of treatment focuses on nutrition, environmental,
and alternative medicine. The short page on applying for disability
insurance is invaluable for its frankness.
Hall's site (see above), this is a readable and worthwhile personal
website. It is the place to go for information about everyday
issues as opposed to the latest medical information. Developed
by Frank Albrecht, Ph.D.from Johns Hopkins, a clinical mental
health counselor whose daughter has CFIDS, topics covered include
medical basics, disability basics, experiences of sick and worn-out
children and their families, schools and education, dealing with
pediatricians and other doctors, and family life and emotional
organization, which funds medical research and provides information,
offers research news, a quarterly newsletter, an online library
of informational materials (including many full-text items) about
relevant topics, and much more.