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- Chromosome
disorders can occur when a chromosome has extra, missing or re-arranged
chromosome material. The following websites deal with many different
kinds of chromosome disorders. We also have separate
pages for many specific chromosome disorders.
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Chromosome 18 Registry &
Research Society
- This nicely
arranged website provides general information about genetics
and chromosomes as well as specific information about the five
major syndromes of chromosome 18.
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- Chromosome 22 Central
- This Canadian-based
parent support group offers information, support and links relating
to a wide variety of chromosome 22 disorders. Interactive features
include message boards, chat room and mailing list.
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- DOC 16 (Disorders
of Chromosome 16) Foundation
- "The
Foundation provides information, education, and support to families
of children living with a chromosome 16 disorder and to expectant
parents confronting a similar diagnosis. The Foundation also
serves as a resource aiding family, friends, caregivers, and
medical professionals in their supportive roles." Its website
provides an overview of chromosome 16 disorders, FAQs, personal
stories, medical articles, and links.
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- SOFT (Support Organization for
Trisomy 18, 13 and Related Disorders)
- "S.O.F.T.
is a nonprofit volunteer organization offering support for parents
who have had a child with a chromesome disorder, and education
to familes and professionals interested in the care of these
children." Its website includes educational literature;
resources and support groups; related contacts; and information
about the organization.
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- Trisomy
9 International Parent Support
- Links to
personal web pages of trisomy 9 families and related sites.
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- Related Subjects
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Matching Services
- Rare Disorders
- Specific disorders (e.g., Cri
du Chat Syndrome, Jacobsen Syndrome,
Turner Syndrome, Velo-Cardio-Facial
Syndrome)
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Resources in your state
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