Us | Publications
for information about living with facial differences? Here are
some good places to start.
- Part of
Columbia-Presbyterian Medical Center's Pediatric Neurosurgery
Home Page, this page provides an overview of craniofacial differences
and pictorial guide to the anatomy and etiology of various types
- The Craniofacial
- This online
book from the Tennessee Craniofacial Center provides information
about surgical techniques used on 32 different craniofacial conditions.
Each section is a separate PDF file (you will need the freely
available Adobe Reader to view it).
- The web
site of Let's Face It, an informational/support organization,
features the complete contents of its excellent resource guide.
Included are: organizations, reading and resources for parents
and professionals, resources especially for young adults, special
resources for cancer survivors, fun and games, speakers and songsters,
resources for easing pain, genetic resources, and and resources
about vascular birthmarks. Hyperlinks are provided.
- The following
national nonprofit organizations provide information and/or services
for people with facial differences. Their web sites provide information
about the organization.
- AboutFace [updated 2/24/01]
- Children's Craniofacial Association [updated 2/24/01]
- Cleft Palate / Lip
- CHARGE Syndrome
- Moebius Syndrome
- Parry Romberg Syndrome
- Stickler Syndrome
- Treacher Collins Syndrome
- Velo-Cardio-Facial Syndrome
- Resources in your state
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