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- Looking
for information about living with facial differences? Here are
some good places to start.
-
Craniofacial
Anomalies
- Part of
Columbia-Presbyterian Medical Center's Pediatric Neurosurgery
Home Page, this page provides an overview of craniofacial differences
and pictorial guide to the anatomy and etiology of various types
of craniosynostosis.
-
The Craniofacial
Surgery Book
- This online
book from the Tennessee Craniofacial Center provides information
about surgical techniques used on 32 different craniofacial conditions.
Each section is a separate PDF file (you will need the freely
available Adobe Reader to view it).
-
Let's
Face It
- The web
site of Let's Face It, an informational/support organization,
features the complete contents of its excellent resource guide.
Included are: organizations, reading and resources for parents
and professionals, resources especially for young adults, special
resources for cancer survivors, fun and games, speakers and songsters,
resources for easing pain, genetic resources, and and resources
about vascular birthmarks. Hyperlinks are provided.
-
- Other
Organizations
- The following
national nonprofit organizations provide information and/or services
for people with facial differences. Their web sites provide information
about the organization.
AboutFace [updated 2/24/01]
Children's Craniofacial Association [updated 2/24/01]
-
- Related
Subjects
Burns
Cleft Palate / Lip
CHARGE Syndrome
Craniosynostosis
Moebius Syndrome
Parry Romberg Syndrome
Stickler Syndrome
Treacher Collins Syndrome
Velo-Cardio-Facial Syndrome
Resources in your state
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