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Hemophilia

 Updated 6/2004

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Hemophilia is a sex-linked hereditary bleeding disorder where one of the plasma proteins needed to form a clot is missing or reduced. Here are some good places to find out more.
 
[bullet] Centers for Disease Control and Prevention - Hematologic Diseases Branch (HDB)
The HDB is mandated by Congress to reduce the complications of hemophilia and other bleeding and clotting disorders. This site provides information about the branch; the archive includes statistical documents and related material.
 
[bullet] National Hemophilia Foundation[starred entry]
Information about bleeding disorders, news, research, programs, documents, and much more. Check out the new online education program.
 
[bullet] World Federation of Hemophilia
The federation is an international nonprofit volunteer-based organization "dedicated to introducing, improving and maintaining care for persons with hemophilia and related disorders." Its web site includes an extensive online library, a Treatment Centre Directory, product recalls and info, events, "Ask the Doc," and an extensive, well-organized list of links and mailing lists. Visitors should note that the site is sponsored by several medical companies.
 
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