Hemophilia

Hemophilia is a sex-linked hereditary bleeding disorder where one of the plasma proteins needed to form a clot is missing or reduced. Here are some good places to find out more.

Centers for Disease Control and Prevention – Hematologic Diseases Branch (HDB): The HDB is mandated by Congress to reduce the complications of hemophilia and other bleeding and clotting disorders. This site provides information about the branch; the archive includes statistical documents and related material.

National Hemophilia Foundation: Information about bleeding disorders, news, research, programs, documents, and much more. Check out the new online education program.

World Federation of Hemophilia: The federation is an international nonprofit volunteer-based organization “dedicated to introducing, improving and maintaining care for persons with hemophilia and related disorders.” Its web site includes an extensive online library, a Treatment Centre Directory, product recalls and info, events, “Ask the Doc,” and an extensive, well-organized list of links and mailing lists. Visitors should note that the site is sponsored by several medical companies.

Related Subjects: Rare Disorders; Resources in your state