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Leukodystrophy

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Leukodystrophy refers to a group of genetic disorders that are characterized by the imperfect growth or development of the myelin sheath that covers nerve fibers in the brain. Most leukodystrophies are characterized by a gradual changes in an infant or child who previously appeared well. There are various forms of leukodystrophy, including Specific leukodystrophies include metachromatic leukodystrophy, Krabbe leukodystrophy, adrenoleukodystrophy, Pelizaeus-Merzbacher disease, Canavan disease, and Alexander disease. For additional information, check these sites.
 
[bullet] NINDS Leukodystrophy Information Page
A fact sheet from the National Institute of Neurological Disorders and Stroke.
 
[bullet] United Leukodystrophy Foundation (ULF)
ULF is a nonprofit "dedicated to providing patients and their families with information about their disease and assistance in identifying sources of medical care, social services, and genetic counseling; establishing a communication network among families; increasing public awareness and acting as an information source for health care providers; and promoting and supporting research into causes, treatments, and prevention of the leukodystrophies." Its website focuses on information about the organization and its services.
 
[bullet] Related Subjects
[bullet] Krabbes Disease
[bullet] Neurological Disorders
[bullet] Rare Disorders
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