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Muscular Dystrophy

 Updated 7/2004

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Muscular dystrophy (MD) refers to a group of genetic diseases marked by progressive weakness and degeneration of the skeletal, or voluntary, muscles that control movement. The major forms of muscular dystrophy are myotonic, Duchenne, Becker, limb-girdle, facioscapulohumeral, congenital, oculopharyngeal, distal and Emery-Dreifuss. For more information, check these sites.
 
[bullet] Information on Human Neurological Diseases: Muscular Dystrophy
A list of medical links from Neurosciences on the Internet.
 
[bullet] Muscular Dystrophy
An overview and resources from the National Institute of Neurological Disorders and Stroke.
 
[bullet] Muscular Dystrophy Association (Australia)
Information about MD and specific disorders, online publications, and interactive opportunities ranging from chat to video-conferencing.
 
[bullet] Muscular Dystrophy Association (MDA) (U.S.)
Information about MD and other neuromuscular diseases, MDA research and services, numerous publications about MD and specific disorders, a database of the organization's clinics, an "Ask the Experts" section, and, of course, numerous ways to donate money for "Jerry's Kids." Recent additions worth noting include a complete online edition of the book Journey of Love: A Parent's Guide to Duchenne Muscular Dystrophy and a chat room.
 
[bullet] Muscular Dystrophy Association of Canada
This English/French site includes fact sheets and brochures, regional information, and fundraising information.
 
[bullet] Muscular Dystrophy Campaign (UK)
Formerly the Muscular Dystrophy Group, this British charity funds medical research and support services for people with MD and other neuromuscular conditions. Its web site includes fact sheets, research information, information relating to caregiving, assistive devices, education and living with a disability, and links.
 
[bullet] Muscular Dystrophy Family Foundation
Information about an organization that "provides services, resources, home medical equipment and adaptive devices to help people with muscular dystrophy and their family members live independent and productive lives."
 
[bullet] Parent Project for Muscular Dystrophy Research
Information about an organization whose mission is to "expedite a treatment and cure for Duchenne and Becker Muscular Dystrophy by funding research and education."
 
[bullet] Related Subjects
[bullet] Movement Disorders
[bullet] Neurological Disorders
[bullet] Neuromuscular Disorders
[bullet] Rare Disorders
[bullet] Specific Disorders
[bullet] Resources in your state
 
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