Often
called "brittle bone disease," Osteogenesis Imperfecta (OI) is a
genetic disorder characterized by bones that break easily, often for little
or no apparent cause. Here are some good resources.
From The National Institutes
of Health Osteoporosis and Related Bone Diseases National Resource Center,
this site includes general information about OI and an excellent series of
fact sheets that address the concerns of parents.
This national nonprofit
organization offers fact sheets, information on OI, research, law and advocacy
information, links to related organizations, support group information, information
for medical professionals, a chat room, and lots more.