The DRM WebWatcher: Parry Romberg Syndrome

	The DRM WebWatcher
	Parry Romberg Syndrome
	Updated 3/2003
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Parry Romberg syndrome (also known as progressive hemifacial atrophy or HFA) is a rare disorder characterized primarily by the wasting away of the tissue on one side of the face.

Beyond the Mirror: This well-written article from the Rocky Mountain News describes the impact of Parry Romberg syndrome on a 10-year-old girl and her family.
Hemifacial Atrophy, Progressive: A technical overview and references from the Online Mendelian Inheritance in Man (OMIM) database.

NINDS Parry Romberg Syndrome Information Page: A brief overview of Parry Romberg syndrome from The National Institute of Neurological Disorders and Stroke.

The Romberg's Connection: This personal website represents "an international support group made up of over 200 individuals and families whose lives are affected by Rombergs Syndrome [and who have] come together to offer our strength, courage, support and friendship to one another." Its contents include a message board relating to surgery, frequently asked questions, a short online newsletter, family photos and stories, and some links.

Related Subjects: Craniofacial Disorders; Neurological Disorders; Rare Disorders; Resources in your state