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- Parry Romberg syndrome (also known as progressive hemifacial atrophy or HFA) is a rare disorder characterized primarily by the wasting away of the tissue on one side of the face.
- Beyond the Mirror
- This well-written article from the Rocky Mountain News describes the impact of Parry Romberg syndrome on a 10-year-old girl and her family.
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Hemifacial Atrophy, Progressive
- A technical overview and references from the Online Mendelian Inheritance in Man (OMIM) database.
- NINDS Parry Romberg Syndrome Information Page
- A brief overview of Parry Romberg syndrome from The National Institute of Neurological Disorders and Stroke.
- The Romberg’s Connection
- This personal website represents “an international support group made up of over 200 individuals and families whose lives are affected by Rombergs Syndrome [and who have] come together to offer our strength, courage, support and friendship to one another.” Its contents include a message board relating to surgery, frequently asked questions, a short online newsletter, family photos and stories, and some links.
- Related Subjects
- Craniofacial Disorders
- Neurological Disorders
- Rare Disorders
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