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- Often called “brittle bone disease,” Osteogenesis Imperfecta (OI) is a genetic disorder characterized by bones that break easily, often for little or no apparent cause. Here are some good resources.
- Osteogenesis Imperfecta
- From The National Institutes of Health Osteoporosis and Related Bone Diseases National Resource Center, this site includes general information about OI and an excellent series of fact sheets that address the concerns of parents.
- Osteogenesis Imperfecta
- A fact sheet from the American Academy of Orthopaedic Surgeons.
- Osteogenesis Imperfecta Federation Europe (OIFE)
- This federation of European OI societies offers access to web sites, listservs, and other OI resources in various languages.
- Osteogenesis Imperfecta Foundation (OIF)
- This national nonprofit organization offers fact sheets, information on OI, research, law and advocacy information, links to related organizations, support group information, information for medical professionals, a chat room, and lots more.
- Related Subjects
- Growth Disorders
- Rare Disorders