Aging With A Disability Resource Guide

Some people are born with disabilities and illnesses, and others are challenged by them later in life. Both strive to live long, productive and satisfying lives, but aging amplifies and causes newly acquired disabilities for everyone. The following organizations address the wide range of increased challenges of aging with a disability.

Administration for Community Living (ACL) – Aging and Disability Networks
Aging and disability networks are made up of local, state, and national organizations and committed advocates working to support older adults and people with disabilities.

Administration for Community Living – No Wrong Door System
This system supports states’ efforts to “streamline access to long-term services and support (LTSS) options for older adults and individuals with disabilities.”

Association on Aging With Developmental Disabilities
AADD says their primary objective is “bringing the aging and developmental disability fields together to create and provide best practices for people aging with developmental disabilities.”

This is a public service of the U.S. Administration on Aging connecting you to services for older adults and their families.

Grantmakers In Aging
Many foundations that award grants in the field of aging are helping to meet the needs of individuals with disabilities. Here are examples of grantmaking that specifically aim to reach older, disabled persons.

National Council on Aging – Disability and Aging Collaborative
NCOA states it leads a coalition of national aging and disability organizations working to advance long-term services and supports for older adults and individuals with disabilities.

NIH National Library of Medicine – Aging with Disability for Midlife and Older Adults
Provides an analysis of middle and older ages aging with disability. The analysis integrates two research avenues, aging with disability and disability trajectories. It supports government efforts to make aging with disability an age-free, lifelong perspective.

Rehabilitation Engineering Research Center (RERC) Program – ACL
The RERC’s stated purpose is to improve the effectiveness of services authorized under the Rehabilitation Act by conducting advanced engineering research and development of innovative technologies designed to solve particular rehabilitation problems or remove environmental barriers.

Rehabilitation Research and Training Center (RRTC) Program – ACL
This center “conducts research to improve rehabilitation methodology and service delivery systems; improve health and functioning; and promote employment, independent living, family support, and economic and social self-sufficiency for individuals with disabilities. They also provide to assist rehabilitation personnel to more effectively provide rehabilitation services to individuals with disabilities.”

The Arc – Center for Future Planning
The Arc provides guidance for creating a plan for people with an intellectual or developmental disability (I/DD) for all stages of their life, especially after a parent or caregiver is no longer available. They have over 600 state and local chapters nationwide.

The Arc – Housing for People with IDD
The Arc is advocating for an increase in affordable, accessible housing for adults with I/DD.

United Nations Dept of Economic and Social Affairs – Aging and Disability
Review of the UN’s framework and goals for promoting and protecting the rights of seniors around the world.