Amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s disease and motor neurone disease (MND), is characterised by a progressive degeneration of the motor cells in the brain and spinal cord. The following sites offer useful information about ALS.
The website of this nonprofit organization provides information about ALS, news, resources, services, and research information. Most of the association’s publications are not online, but may be ordered at no charge by persons with ALS.
The Survival Guide is a very extensive personal website by an individual with ALS. The site is well designed and packed with information and links. Topics include ALS news, causes of ALS, statistics, treatments, adaptive equipment, legal/financial, advocacy, ALS Digest, support group, research abstracts, resources, and much more. As always, we recommend viewing medical and legal information on personal websites with caution.
The Alliance is a consortium of over 50 national patient support and advocacy groups from more than 40 countries. Its website includes general information about ALS and ALS news as well as information about the organization. The membership directory is especially useful for people seeking ALS resources in other countries.
At first glance, this looks like a just-for-fund-raising site, so be sure to scroll down for a excellent collection of current (and archived) news articles about ALS, as well as articles about people with ALS, links, and readings.
Geared primarily to researchers and clinicians, this extensive web site offers information about research and treatment, news, clinical trials, conferences, and research centers. Patient resources and links are also included.