Amyotrophic Lateral Sclerosis (ALS) Resources Guide

Amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s disease and motor neurone disease (MND), is characterised by a progressive degeneration of the motor cells in the brain and spinal cord. The following sites offer useful information about ALS.
The ALS Association
The website of this nonprofit organization provides information about ALS, news, resources, services, and research information. Most of the association’s publications are not online, but may be ordered at no charge by persons with ALS.
ALS (Lou Gehrig’s Disease) Information & Resources
This section of the “Doctor’s Guide” provides links to medical news and alerts, drug information, discussion groups and newsgroups, and more.
ALS Survival Guide
The Survival Guide is a very extensive personal website by an individual with ALS. The site is well designed and packed with information and links. Topics include ALS news, causes of ALS, statistics, treatments, adaptive equipment, legal/financial, advocacy, ALS Digest, support group, research abstracts, resources, and much more. As always, we recommend viewing medical and legal information on personal websites with caution.
Amyotrophic Lateral Sclerosis Fact Sheet
This publication from the National Institute of Neurological Disorders and Stroke (NINDS) provides an overview of ALS, including its symptoms, diagnosis, causes, treatment, research, and resources.
The International Alliance of ALS/MND Associations
The Alliance is a consortium of over 50 national patient support and advocacy groups from more than 40 countries. Its website includes general information about ALS and ALS news as well as information about the organization. The membership directory is especially useful for people seeking ALS resources in other countries.
Muscular Dystrophy Association (MDA) – A Guide to Materials about ALS on this Web Site
The MDA website has a wide variety of publications and resources about MLS, including an online fact sheet, caregivers’ guide, newsletter, and service programs. This page is a handy starting point.
My Experience with ALS
Noted scientist Stephen Hawkins writes about his experiences.
At first glance, this looks like a just-for-fund-raising site, so be sure to scroll down for a excellent collection of current (and archived) news articles about ALS, as well as articles about people with ALS, links, and readings.
World Federation of Neurology – Amyotrophic Lateral Sclerosis
Geared primarily to researchers and clinicians, this extensive web site offers information about research and treatment, news, clinical trials, conferences, and research centers. Patient resources and links are also included.
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