Angelman Syndrome Resources Guide

Angelman syndrome is a congenital neurological disorder characterized by severe mental retardation, unusual facial appearance, and muscular abnormalities. For more information about Angelman syndrome, check these sites.
Angelman Syndrome
This fact sheet from the National Institute of Neurological Disorders and Stroke (NINDS) discusses what Angelman syndrome is, treatment issues, prognosis, research, and sources of additional information.
Angelman Syndrome Foundation (ASF)
ASF is a nonprofit membership organization whose mission is to “advance the awareness and treatment of Angelman Syndrome through education, information exchange and research.” Its website is filled with information about Angelman syndrome for families, doctors, and researchers, as well as information about the organization.
Angels Among Us… Angelman Syndrome Resources & Information
This website by the sister of an individual with Angelman syndrome includes links to pamphlets, brochures and handbooks (in many languages), “Angelman Syndrome
From A to Z,” newspaper and magazine articles, poems and essays, conference proceedings, and much more.
Heaven Must Be Missing an Angel
The father of a child with Angelman syndrome compiled this guide to Angelman syndrome information, parent support groups, mailing lists, and more. There’s also an extensive photo album of children with Angelman syndrome.
International Angelman Syndrome Association (IASA)
The IASO is and “umbrella” organization of national Angelman syndrome associations around the world. Check out its website for articles, member links, conference information, and a huge collection of links to online information about Angelman syndrome.
Related Subjects
Chromosome Disorders
Developmental Disabilities
Facial Differences
Mental Retardation
Neurological Disorders
Rare Disorders
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