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Brain Injuries and Disorders
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- Brain injuries may be traumatic (the result of damage to brain tissue caused by an external force, such as car accidents, acts of violence, falls, sports and recreational injuries) or acquired (the result of damage to the brain by strokes, tumors, diseases or other conditions). For information about brain injuries, see these sites.
- Brain Injury Association
- The website of this national organization offers is packed with information, resources, and interactive opportunities. Topics range from “The Road to Rehabilitation” to the costs and causes of brain injury. You’ll also find a kids corner, conference listing, and chat room. Many of the documents are in pdf format.
- Family Caregiver Alliance
- Though based in the San Francisco Bay area, this support organization for caregivers of adults with Alzheimer’s disease, stroke, traumatic brain injury, Parkinson’s disease, ALS and related brain disorders offers valuable information and support for caregivers everywhere. Included are an online support group, caregiver consultation and question-and-answer service; fact sheets and reading lists; webcasts; a news bureau for reporters; and more. Also listed under Caregiving.
- Maintained by the Head Injury Hotline, this site provides information, education and support to foster self-advocacy and self-care centered in partnership with families and professionals. Don’t be fooled by the simple layout: this site is crammed with information and resources. Spend some time surfing. You’ll find information about brain injury; resources on doctors, rehab facilities, and lawyers; resources to develop your advocacy skills; and much more.
- The Missouri Traumatic Brain Injury Demonstration Project
- One of the 17 TBI Model Systems, the Missouri Project has developed a useful website that includes a “TBI” primer, FAQs, resources, links, personal stories, etc.
- Perspectives Network
- This organization focuses on “positive communication between persons with brain injury, family members/ caregivers/friends of persons with brain injury, professionals who treat persons with brain injury and community members in order to create positive changes and enhance public awareness and knowledge of acquired/traumatic brain injury.” Its web site includes a message board, frequently asked questions, articles, reference materials, resource lists, a survivor art gallery, free e-mail service, and more.
- TBI-Net is the web site of the Research and Training Center (RTC) on Community Integration of Individuals With Traumatic Brain Injury, whose purpose is to “expand our knowledge of ‘what works’ to help people with traumatic brain injuries (TBI) in living their lives after injury.” The site includes FAQs; a searchable database of TBI-related articles, advice, poetry, and creative writing from individuals with TBI; information about the RTC and its research activities.
- Traumatic Brain Injury (TBI) Model Systems
- The Traumatic Brain Injury (TBI) Model Systems of Care are federally funded programs that focus primarily on developing and demonstrating a model system of care for persons with TBI, and maintaining a standardized national database for innovative analyses of TBI treatment and outcomes. There are 17 centers, each of which provides a coordinated system of emergency care, acute neurotrauma management, comprehensive inpatient rehabilitation and long-term interdisciplinary follow-up services. The web site includes general information about the systems, facts and figures about TBI, and related links.
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