Chromosome disorders can occur when a chromosome has extra, missing or re-arranged chromosome material. The following websites deal with many different kinds of chromosome disorders. We also have separate pages for many specific chromosome disorders.
This Canadian-based parent support group offers information, support and links relating to a wide variety of chromosome 22 disorders. Interactive features include message boards, chat room and mailing list.
“The Foundation provides information, education, and support to families of children living with a chromosome 16 disorder and to expectant parents confronting a similar diagnosis. The Foundation also serves as a resource aiding family, friends, caregivers, and medical professionals in their supportive roles.” Its website provides an overview of chromosome 16 disorders, FAQs, personal stories, medical articles, and links.
“S.O.F.T. is a nonprofit volunteer organization offering support for parents who have had a child with a chromesome disorder, and education to familes and professionals interested in the care of these children.” Its website includes educational literature; resources and support groups; related contacts; and information about the organization.