Down Syndrome

Looking for information about Down syndrome (DS)? Here are some good places to start.
Down Syndrome: Health Issues
The home page of Len Leshin, M.D., a pediatrician and father of a child with Down Syndrome, features the author’s essays and related health articles, and a huge, well-organized list of links. An excellent site for parents.
The Down Syndrome WWW Page
Developed by subscribers to the Down Syndrome Listserv, this page includes an extensive list of Down syndrome organizations world-wide as well as many other useful resources and links.
It is hard to get us to look twice at an “anonymous” web site (see our FAQ on evaluating web sites), but DownsCity did catch our eye for its extensive listings of parent groups and support organizations, events, products and services, RSV Info, education resources, nutrition, communities and camps, and other Down-syndrome related categories. Seemingly good info – but use with a bit of caution.
Under reconstruction when we last checked in May 2000, this web site by the The Down Syndrome Educational Trust in England features online publications and articles and many other useful resources, as well as information about the organization and its services.
National Down Syndrome Congress
This national advocacy organization offers information about online resources, clinics, a downloadable “new parent package,” news, bibliographies, and related material, as well as information about the organization and its services.
National Down Syndrome Society
Information about this national organization’s services and programs.
Riverbend Down Syndrome Parent Support Group [link updated 2/9/01]
While we don’t typically provide information about local support groups in The DRM WebWatcher (see the DRM Regional Resource Directory for that), this Illinois parents’ group has developed a well-organized web site that is packed with information and resources of interest to a wide national audience. The site is arranged by expandable/collapsible topics (e.g., early intervention, inclusion, life planning, mathematics, resources, supplements, therapies) that contain relevant articles and essays. Worth checking out, no matter where you live.
The web site of this “informal society of individuals, parents, and friends involved with the world of Down Syndrome” features short news articles, newsletters, events, pictures, links, etc.