Leukodystrophy refers to a group of genetic disorders that are characterized by the imperfect growth or development of the myelin sheath that covers nerve fibers in the brain. Most leukodystrophies are characterized by a gradual changes in an infant or child who previously appeared well. There are various forms of leukodystrophy, including Specific leukodystrophies include metachromatic leukodystrophy, Krabbe leukodystrophy, adrenoleukodystrophy, Pelizaeus-Merzbacher disease, Canavan disease, and Alexander disease. For additional information, check these sites.
NINDS Leukodystrophy Information Page
A fact sheet from the National Institute of Neurological Disorders and Stroke.
United Leukodystrophy Foundation (ULF)
ULF is a nonprofit “dedicated to providing patients and their families with information about their disease and assistance in identifying sources of medical care, social services, and genetic counseling; establishing a communication network among families; increasing public awareness and acting as an information source for health care providers; and promoting and supporting research into causes, treatments, and prevention of the leukodystrophies.” Its website focuses on information about the organization and its services.
Related Subjects
Krabbes Disease
Neurological Disorders
Rare Disorders
Resources in your state

(c) 1997-2013 Disability Resources, inc.