Neurofibromatosis (NF)

Neurofibromatoses (NF) are genetic disorders which cause tumors to grow along various types of nerves anywhere on or in the body. They can also lead to developmental problems. Check these sites for information about neurofibromatosis.

 

Indexes

 

Neurofibromatosis Resources
This excellent personal home page lists online sources of information about NF, including general information on both types of neurofibromatosis; links pertaining specifically to children and teenagers; additional conditions which may accompany NF; photographs; genetics; support; newsgroups; and personal home pages. Links are selected and briefly annotated.
 

Fact Sheets

 

The Neurofibromatoses
A fact sheet from the National Institute of Neurological Disorders and Stroke.
 

 

Web Sites

 

National Neurofibromatosis Foundation
This national organization offers information about NF, including diagnosis, clinical and research programs, support, and resources, as well as chat, bulletin board, and more.
 

Neurofibromatosis, Inc.
NF, Inc. is an organization comprised of independent state and regional chapters that provide support and services to NF families; it also works closely with clinical and research professionals. Its web site includes information, news, a bulletin board, newsletter, resources, and organizational information.
 

Related Subjects
Brain Tumors

Deafness and Hearing Impairments

Neurological Disorders

Rare Disorders

Resources in your state