Parry Romberg Syndrome

Parry Romberg syndrome (also known as progressive hemifacial atrophy or HFA) is a rare disorder characterized primarily by the wasting away of the tissue on one side of the face.

 

Beyond the Mirror
This well-written article from the Rocky Mountain News describes the impact of Parry Romberg syndrome on a 10-year-old girl and her family.
Hemifacial Atrophy, Progressive
A technical overview and references from the Online Mendelian Inheritance in Man (OMIM) database.
 

NINDS Parry Romberg Syndrome Information Page
A brief overview of Parry Romberg syndrome from The National Institute of Neurological Disorders and Stroke.
 

The Romberg’s Connection
This personal website represents “an international support group made up of over 200 individuals and families whose lives are affected by Rombergs Syndrome [and who have] come together to offer our strength, courage, support and friendship to one another.” Its contents include a message board relating to surgery, frequently asked questions, a short online newsletter, family photos and stories, and some links.
 

Related Subjects
Craniofacial Disorders

Neurological Disorders

Rare Disorders

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