The National Institute of Neurological Disorders and Stroke defines reflex sympathetic dystrophy syndrome (RSDS) as “a chronic condition characterized by severe burning pain, pathological changes in bone and skin, excessive sweating, tissue swelling, and extreme sensitivity to touch. The syndrome, which is a variant of a condition known as causalgia, is a nerve disorder that occurs at the site of an injury (most often to the arms or legs). It occurs especially after injuries from high-velocity impacts such as those from bullets or shrapnel. However, it may occur without apparent injury.” Here are some excellent resources for people with RSD and their families and service providers.
Based in Maine, this nonprofit group is composed of “patients, parents and friends whose mission is to spread information to anyone and everyone who asks or will listen.” The nicely organized site includes definitions, medical information, living with RSD, an extensive selection of links to both medical and support resources, a teen area, an international database of support groups, links, and and more.