Good resources from down under! This site includes information and links relating to computer access and adaptive equipment, international and Australian RP and low vision support organizations, links to research sites and sites by persons with RP, chat, mailing lists, and more.
Focus is a “a grass-roots group of RP patients calling for new and expanded directions in scientific research and applied medicine for their condition.” Its website provides information about alternative treatments and current research and studies, which are provided on “an information only basis and do not intend or imply that they are the correct or only course of treatments that should be administered.” The site includes extensive information about RP and nutrition, FAQs, and a newsletter. As always, DRM recommends viewing medical and legal information on personal websites with caution.
John Wenberg, the author of this personal homepage, has compiled an extensive guide to RP and RP resources online. Topics covered include RP links, RP E-Pals, mailing lists, research, RP Internet chat, the inheritance of retinal degeneration, online articles, contacts, FAQs, personal experiences, and more. As always, DRM recommends viewing medical and legal information on personal websites with caution.