According to the Spina Bifida Association of America, Spina bifida is the most frequently occurring permanently disabling birth defect. Resulting from the failure of the spine to close properly during the first month of pregnancy. spina bifida can result in paralysis, bowel and bladder problems, hydrocephalus, the accumulation of fluid in the brain. Hydrocephalus is controlled by a surgical procedure called “shunting” which relieves the fluid build up in the brain by redirecting it into the abdominal area. Most children born with spina bifida live well into adulthood as a result of today’s sophisticated medical techniques.
This excellent personal home page by Linda Rowley includes spina bifida organizations, articles, web sites, and online discussion groups; related disorders; education issues; personal web pages and photos; genetic and prenatal issues; and more.
If is an umbrella agency for hydrocephalus and spina bifida organizations in over 40 countries. Its web site offers fact sheets, newsletters, links, and information about the organization and its members.
This web site of this national organization provides information about spina bifida, access to local chapters and clinics, information about common concerns relating to spina bifida (e.g., Agent Orange and latex allergy), links, and more.