Xeroderma Pigmentosum (XP)

Xeroderma pigmentosum (XP) is a rare genetic defect that causes acute sensitivity to ultra violet light, particularly sunlight. XP can result in blindness and deafness, blistering or freckling on minimum sun exposure, developmental disabilities, dwarfism and hypergonadism, increased skin and eye cancers, and mental retardation.

Children of the Moon
An “online community” for persons with XP and similar light sensitivity disorders, this site features sections for children, teens, adults, and families. There are opportunities for interaction as well as lots of links, not necessarily to XP sites.
 

UCSF Comprehensive Cancer Center – James Cleaver Lab
James Clever, who identified XP as a genetic disease affecting DNA repair, continues to conduct research into XP. This site describes some of his current projects.
Understanding Xeroderma Pigmentosum
A fact sheet from the National Institutes of Health, in PDF format.
Xeroderma Pigmentosum Society
The web site of this national organization offers general information about XP, links, news, research notes, the archives of a discussion group, and information about the society.
Related Subjects
Rare Disorders

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