Ehlers-Danlos Syndrome

Ehlers-Danlos Syndrome (EDS) is group of hereditary connective tissue disorders that can affect the skin, ligaments, and internal organs.
Canadian Ehlers-Danlos Association
This bilingual (English/French) website provides information about EDS, self-help information, personal stories, a list of worldwide EDS groups, links, and more. The association also runs listservs for adults and children.
Ehlers-Danlos National Foundation (EDNF)
This American membership organization provides articles, pictures, a quarterly newsletter, information about local support groups, a kids’ section, links, and more.
Ehlers-Danlos Syndrome UK Support Group
This British group’s website provides fact sheets, news, links, a message board, and other resources.
Ehlers Danlos Syndrome
An overview from the National Organization for Rare Disorders.
Good clinical profiles of Ehlers-Danlos Syndrome, Kyphoscoliosis Type and Ehlers-Danlos Syndrome, Vascular Type.
Related Subjects
Rare Disorders
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